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Video
ELSIcon2022 Panel: Developing an Evidence Base for Investigative Genetic Genealogy (IGG) Policy-Making
ELSIcon2022 • Panel Session 1 • May 31, 2022 Ellen Clayton, Stephanie Malia Fullerton, Amy McGuire, Natalie Ram Investigative genetic genealogy (IGG) is a novel technique for identifying…- Live
- Panel
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
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Video
ELSIcon2022 Paper: Cultivating just & equitable genomics research partnerships with community health centers
ELSIcon2022 • Paper • June 2, 2022 Johanna Crane, Carolyn Neuhaus Research partnerships with community health centers serving ethnically and economically diverse communities present an…- Live
- Paper
- health disparities
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Video
ELSIcon2022 Panel: The Ethics of Influence and Choice Architecture in Genomics: Where Have We Been and Where Are We Going?
ELSIcon2022 • Panel • June 3, 2022 Benjamin Berkman, Susanna McGrew, Leila Jamal In Western bioethics, patient choice and autonomy have historically carried the most weight in conversations…- Live
- Panel
- Uptake of genetic testing
- Genetic Counseling
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Video
ELSIcon2022 Paper: Dorothy, We’re Not in dbGaP Anymore: Emerging Cloud-Based Biomedical Data and Analysis Platforms and their Implications for Data Stewardship
ELSIcon2022 • Paper • June 3, 2022 Presented by: Sarah Nelson Jacklyn Dahlquist, Stephanie M. Fullerton Individual-level genomic, environmental, and linked health outcome data are being…- Live
- Paper
- Data and data stewardship
- precision medicine
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Publication
Pharmacogenomics beyond single common genetic variants: The way forward
Annual Review of Pharmacology and Toxicology -
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Publication
Returning clinically relevant research results to participants: Guidelines for investigators and the IRB
Ethics & Human Research -
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Publication
Toward depathologizing queerness: An analysis of queer oppression in clinical genetics
Journal of Genetic Counseling -
Publication
Addressing the challenge of biomedical data inequality: An artificial intelligence perspective
Annual Review of Biomedical Data Science