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Publication
Perspectives from enrollees of a large U.S. health care system on informed consent for genetic research
Journal of Patient-Centered Research and Reviews -
Grant Abstract
Genomics and Native Communities: Perspectives, Ethics, and Engagement
PUBLIC HEALTH RELEVANCE: This project will explore the ethical, social, and cultural issues of the American Indians in regards to genetic research. Engaging tribal leaders and relevant stakeholders…- Academia
- Adoption
- Alaska Native
- American Indians
- Anthropology
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Additional Resource
Maryland 2015 State Bills (Maryland 2015 HB 552)
For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or…- state bill
- bill
- bill status died
- Maryland
- insurance nondiscrimination
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Publication
Grand challenges and great opportunities in science, technology, and public policy
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The implementation of large-scale genomic screening or diagnostic programmes: A rapid evidence review
European Journal of Human Genetics -
Grant Abstract
Cost-effectiveness of Whole Genome Sequencing of Healthy Adults
Whole genome sequencing has vast potential to improve the care of generally healthy adults by identifying predispositions for disease to facilitate targeted prevention and screening efforts, by…- Adult
- Area
- base
- behavioral response
- Benign
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Job Posting
DARPA Visiting Scholar for ELSI
The Defense Advanced Research Projects Agency (DARPA) is piloting an ethical, legal, and societal implications (ELSI) Visiting Scholar one-year position for a mid-career professional who studies the…- ELSI
- Careers in ELSI
- Emerging Technologies
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Grant Abstract
A Case-Based Ethics Curriculum for the Biotech Industry
The general aim of the project is to research and develop instructional material on business ethics decision making for those involved in commercializing biotechnology and genomics products. There…- behavioral /social science research tag
- biotechnology
- case history
- consumer product
- curriculum
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Publication
Introduction: Biobanks, genomics, and research--a nightmare for public policy makers?
Ashgate Pub. Ltd.Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…