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Video
The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants
ELSIcon2022 • Pre-recorded Panel Sonya Jooma - All of Us Research Program, National Institutes of Health, Deputy Policy Director Katherine Blizinsky, PhD - All of Us Research Program, National…- precision medicine
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Collection
Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement
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Publication
Importance of diversity in precision medicine: Generalizability of genetic associations across ancestry groups toward better identification of disease susceptibility variants
Annual Review of Biomedical Data Science -
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Publication
Heritable human genome editing is 'currently not permitted', but it is no longer 'prohibited': So says the ISSCR
Journal of Medical Genetics -
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Publication
At the research-clinical interface: Returning individual genetic results to research participants
Clinical Journal of the American Society of Nephrology -