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ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
Publication
Entwined processes: Rescripting consent and strengthening governance in genomics research with indigenous communities
The Journal of Law, Medicine & Ethics -
Publication
Pragmatic and ethical challenges of incorporating the genome into the electronic medical record
Curr Genet Med RepClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): TL1 TR000422, U01 HG006507, HG006507 -
Publication
Select ethical aspects of next-generation sequencing tests for newborn screening and diagnostic evaluation of critically ill newborns
International Journal of Neonatal Screening -
Publication
Ethical and welfare implications of genetically altered non-human primates for biomedical research
Journal of Applied Animal Ethics Research -
Publication
Cystic fibrosis and the law: The ramifications of new treatments
Journal of Law and Medicine -
Publication
The ethics of crowdfunding in paediatric neurology
Developmental Medicine & Child Neurology -
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Publication
Evolving technologies in medical genetics and genomics
American Journal of Medical Genetics Part C