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Publication
Toward a better understanding of the experience of patients with moderate penetrance breast cancer gene pathogenic/likely pathogenic variants: A focus on ATM and CHEK2
Journal of Genetic Counseling -
Grant Abstract
Research, Treatment and Informed Consent in Gene Therapy
This project is designed to analyze the adequacy of the Belmont Report's distinction between research and treatment as a basis for informed consent policy especially as it pertains to gene…- behavioral /social science research tag
- Clinical Research
- Decision Making
- gene therapy
- health care policy
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Grant Abstract
University of Michigan Training Program in ELSI Research
Genetics and genomics research are rapidly generating scientific discoveries, technological advances, and clinical applications, each with important implications for medicine and public health. In…- Michigan
- Research
- Training Programs
- Universities
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Grant Abstract
Risk-Benefit Trade-Offs for Whole Genome Sequencing
New technologies are enabling the arrival of the much awaited affordable genome the ability to sequence an individuals or a tumors entire genome quickly and inexpensively [whole genome sequencing (…- Benefits and Risks
- Clinical
- clinical care
- clinical practice
- Clinical Trials
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Publication
Genetic testing in Alzheimer's disease: Benefits risks and public policy
Journal of Gerontological NursingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetic engineering in new zealand: Science, ethics and public policy
Centre for Resource Management, Lincoln UniversityDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Patient Preferences for Collecting and Repurposing Genetic, Consumer and Health Care Information
Health-relevant information no longer comes just from electronic medical records but also from the digital footprints left behind when people use mobile applications, search the internet, wear…- American
- base
- behavioral health
- Big Data
- Biomedical Research
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Publication
Negotiating severity behind the scenes: Prenatal testing in Germany
European Journal of Human Genetics -
Publication
Governing digitally integrated genetic resources, data and literature: Global intellectual property strategies for the microbial research commons
Cambridge University PressDuke University Center for Public Genomics. Grant number(s): P50HG003391