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Publication
Mapping public policy for genetic technologies: A legislator's resource guide
National Conference of State LegislaturesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Advances in genetic information: A guide for state policy makers
Council of State Governments -
Grant Abstract
Response of a Sample Population with the Deleterious HD allele RESPOND-HD
This study entitled "Response of a Sample Population with the Deleterious HD allele" (RESPOND-HD) will examine ethical, legal, and social considerations that may affect the experience of…- Alleles
- behavioral /social science research tag
- Clinical Research
- Data Collection
- Epidemiology
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Publication
Parental perspectives regarding the return of genomic research results in neurodevelopmental disorders in South Africa: Anticipated impact and preferences
Journal of Community Genetics -
Publication
Narrating genetic disabilities: Social constructs, medical treatment, and public policy
Issues in Law and MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Theological Questions Raised by the Human Genome Initiative
The Center for Theology and the Natural Sciences will monitor the ongoing research of the HGP by drawing out its implications for theology and ethics. The project's long range value will be to…- culture
- Ethics
- Genetic Counseling
- genetic mapping
- Genome
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Grant Abstract
Parent Communication of BRCA1/2 Test Results to Children
One of the primary motivations for parents to participate in BRCAI/2 testing is to find out about their minor children's risk of developing cancer. However, parents often report feeling…- adolescence (12-20)
- behavior prediction
- behavioral /social science research tag
- behavioral medicine
- brca gene
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Publication
To use or not to use? An ethical analysis of access to data and samples of a deceased patient for genetic diagnostic and research purposes
Journal of Medical Ethics and History of Medicine -