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Job Posting
Associate Professor; Assistant Professor, Health Humanities & Bioethics
The Department of Health Humanities & Bioethics in the University of Rochester School of Medicine and Dentistry (URSMD) seeks to recruit a faculty member at the level of assistant professor or…- Pediatrics
- ELSI
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Video
Exploring Difference in the Biology Classroom: Engaging with Genetic Disability and Difference
Date: March 8 2023, 3-4 pm PT / 6-7 pm ET Language in biology and medicine can frame disability as a deviation from what is normal, acceptable, and welcome - a framework that can extend…- Continuing Education
- disability
- biology education
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Video
ELSIcon2022 Panel: Privacy, Agency, and Relationships in the Genomic Era: Views from the Public
ELSIcon2022 • Panel • May 27, 2022 Ellen Clayton, Sarah Hagaman, Ayden Eilmus, Zhijun Yin This panel highlights the transdisciplinary approach our Center for Genetic Privacy and Identity in…- genetic identity
- Genetic testing and screening
- Panel
- Pre-Recorded
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Video
ELSIcon2022 Paper: A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Paper • May 27, 2022 Ilhak Lee, Hyun-Young Park, Chai Hee Youl, Jeong Eun Kim, Hannah Kim, Jihyun Yang This survey is aimed at identifying the perception of the general public and…- Motivation to participate in research
- law
- Regulation
- Governance
- Paper
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Video
ELSIcon2022 Paper: Exploring Disparities and Equity Across the Newborn Screening System
ELSIcon2022 • Paper • June 1, 2022 Aaron Goldenberg, Beth Tarini, Natasha Bonhomme, Amy Gaviglio As with much of society, public health and medicine have been called to examine and act on…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Panel: The Ethics of Influence and Choice Architecture in Genomics: Where Have We Been and Where Are We Going?
ELSIcon2022 • Panel • June 3, 2022 Benjamin Berkman, Susanna McGrew, Leila Jamal In Western bioethics, patient choice and autonomy have historically carried the most weight in conversations…- Live
- Panel
- Uptake of genetic testing
- Genetic Counseling
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Additional Resource
Consensus Study Report, Science and Security in a Post 9/11 World: A Report Based on Regional Discussions Between the Science and Security Communities, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2007)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on actions to maintain the scientific research environment given the heightened security of…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Collection
Dataveillance and Human Rights
Nearly 75 years ago, countries agreed to an International Bill of Human Rights, that included, among other fundamental rights, a right to privacy, a right to science, and a right to health. Cohesive…- data privacy
- data justice
- public health surveillance
- HIPAA
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