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Publication
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Nature Reviews Genetics -
Publication
Indigenous data sovereignty in genomics and human genetics: Genomic equity and justice for Indigenous peoples
Annual Review of Genomics and Human Genetics -
Publication
Lessons learned in genetic research with Indigenous Australian participants
Medical Journal of Australia -
Video
ELSIcon2024 Plenary: Indigenous Data Sovereignty: Finding Pathways for Equitable Benefit Sharing from Genomic Science
ELSIcon2024 • Plenary • June 10, 2024 Authors: Maui Hudson - University of Waikato, Te Pua Wananga ki te Ao (New Zealand) Indigenous Data Sovereignty (IDS) represents a vital…- ELSIcon2024
- 6th ELSI Congress
- Indigenous communities collaboration
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Video
October 2024 ELSI Friday Forum: The Summer internship for INdigenous peoples in Genomics – Beyond Settler Science
Scientists from dominant genomic institutions are beginning to recognize the ways in which they have been and continue to be non-inclusive and harmful to marginalized communities, especially to…- Indigenous genomics
- marginalized groups
- genomic science
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Publication
Models of Data Governance and Advancing Indigenous Genomic Data Sovereignty
Knowledge Discovery and Data Mining -
Video
ELSIcon2024: Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona Scientific studies with Indigenous Peoples have sometimes been termed…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- Indigenous communities collaboration
- Law, regulation, and governance
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Publication
Entwined processes: Rescripting consent and strengthening governance in genomics research with indigenous communities
Journal of Law, Medicine & Ethics -
Collection
Biocolonialism and Other “Western”-Centered Bioethical Failures Onto Indigenous Peoples
There are complex, historical reasons why global Indigenous peoples have largely not engaged in genetics and genomics research. For example, if we look to the 1990s and early 2000s, global Indigenous…- Indigenous
- genetic data
- genetic ancestry
- decolonization
- Indigenous data