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Publication
The need for an intersectionality framework in precision medicine research
American Journal of Human Genetics -
Grant Abstract
Ethical, Legal and Social Issues for Precision Medicine and Infectious Disease
Precision medicine is an emerging approach for disease treatment and prevention that takes into account individual variability in genes, environment, and lifestyle for each person. The Precision…- Attention
- Bioethics
- burden of illness
- career development
- Chronic Disease
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Video
ELSIcon2022 Paper: Precision medicine for whom? Upstream and downstream exclusion
ELSIcon2022 • Paper • May 31, 2022 Ilaria Galasso This paper scrutinizes the precision medicine (PM) approach in terms of benefits distribution: it examines the expected outputs of PM research…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Publication
Mapping uncertainty in precision medicine: A systematic scoping review
Journal of Evaluation in Clinical Practice -
Publication
Communicating precision medicine research: Multidisciplinary teams and diverse communities
Public Health Genomics -
Research Tool
8 Consent Scenarios for a Precision Medicine Cohort Study
These eight consent scenarios that describe consent and data sharing arrangements were used to assess respondents' opinions of the conduct of a precision medicine cohort study on genes and… -
Grant Abstract
Investigating ethical challenges in emerging precision medicine research with disability communities: The case of cerebral palsy
Innovations in precision medicine are rapidly changing scientific understandings of the causes of and potential treatments for the broad range of health conditions affecting the one-in-four Americans…- disability
- ableism
- precision medicine