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Publication
Moving beyond Bermuda: Sharing data to build a medical information commons
Genome ResDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Ethics and governance challenges related to genomic data sharing in southern Africa: The case of SARS-CoV-2
Lancet Global Health -
News
All of Us Research Program Seeks Input on Environmental Health Data
The National Institutes of Health’s All of Us Research Program has issued a Request for Information (RFI) to gather public suggestions on integrating environmental health data…- All of Us Research Program
- Environmental Health
- request for information
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Publication
Open science and human genetic data: Recommendations on South Africa's Draft National Open Science Policy
Frontiers in Genetics -
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Publication
Data sharing and intellectual property in a genomic epidemiology network: Policies for large-scale research collaboration
Bulletin of the World Health OrganizationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Duke Center for the Study of Public Genomics
Duke's Center for the Study of Public Genomics will gather and analyze information about the role of publication, data sharing, materials-sharing, patenting, database protection, and other…- Africa
- base
- benefit sharing
- Bidil
- Businesses
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Video
Affirming Sex and Gender Diversity in Genetics Practices, Policies, and Laws: A Call to Action
This ELSI Friday Forum took place on December 8, 2023. There are already many barriers to appropriate health care for transgender, gender diverse, and intersex (TGDI) communities. The recent surge…- gender diversity
- gender/sexuality
- Biomedical policy
- genetics and law