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Research Tool
CSER Phase 2 Organizational Readiness to Change Assessment
The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing. It is comprised of 19 items from an existing measure, the ORCA (… -
Research Tool
CSER Phase 2 Organizational Readiness to Change Assessment
The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing. It is comprised of 19 items from an existing measure, the ORCA (… -
Video
ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI
ELSIcon2022 • Paper • May 27, 2022 Jenny Reardon, Stephanie M. Fullerton, and Sandra Soo-Jin Lee Increasingly, public and private funders have come to recognize the critical significance of…- Reflections on the ELSI field
- equity and justice in genetics
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News
Request for Abstracts: ELSIcon2022
ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 • Columbia University, New York, NY Research on the ethical, legal, and social implications (ELSI) of genetics research… -
Publication
Modes of responsibility in disclosing cancer genetic test results to relatives: An analysis of Swiss and Korean narrative data
Patient Education and CounselingAceti and colleagues spoke with Korean and Swiss women carrying BRCA1 or BRCA2 pathogenic variants and identified five modes of responsibility in disclosing cancer genetic results to family:… -
Publication
The UK's policies on genetic testing for late-onset disorders
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
FDA, activists seek judgements in food policy lawsuit
Nature BiotechnologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Conflict-of-interest problems lead to policy changes
Nature MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
British insurers announce new genetic testing policy
Professional Ethics ReportDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…