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Video
ELSIcon2022 Paper: A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Paper • May 27, 2022 Ilhak Lee, Hyun-Young Park, Chai Hee Youl, Jeong Eun Kim, Hannah Kim, Jihyun Yang This survey is aimed at identifying the perception of the general public and…- Motivation to participate in research
- law
- Regulation
- Governance
- Paper
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Video
ELSIcon2022 Paper: Exploring Disparities and Equity Across the Newborn Screening System
ELSIcon2022 • Paper • June 1, 2022 Aaron Goldenberg, Beth Tarini, Natasha Bonhomme, Amy Gaviglio As with much of society, public health and medicine have been called to examine and act on…- Live
- Paper
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Panel: The Ethics of Influence and Choice Architecture in Genomics: Where Have We Been and Where Are We Going?
ELSIcon2022 • Panel • June 3, 2022 Benjamin Berkman, Susanna McGrew, Leila Jamal In Western bioethics, patient choice and autonomy have historically carried the most weight in conversations…- Live
- Panel
- Uptake of genetic testing
- Genetic Counseling
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Grant Abstract
Assessing Risk Communication Educational Practices in Genetic Counseling Programs
Genetic susceptibility testing for common diseases will become widespread soon and form an integral component of evidence-based medicine and health care delivery. With advances in personalized risk…- Alleles
- Anxiety
- Area
- Behavior
- Behavioral Genetics
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Publication
Welcoming the future: Embracing novel technologies for a progressive health system
ESMO Open -
Publication
DECIPHER: Improving genetic diagnosis through dynamic integration of genomic and clinical data
Annual Review of Genomics and Human Genetics -
Publication
Underpinnings of the halachic approach to BRCA screening and intervention: Facilitating provider counseling for observant Jewish populations
Rambam Maimonides
Medical Journal -
Publication
The object-based and process-based regulation of genome editing
European Journal of Health Law -
Publication
Human pangenomics: Promises and challenges of a distributed genomic reference
Life (Basel) -
Publication
Immortal data: A qualitative exploration of patients' understandings of genomic data
European Journal of Human Genetics