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Publication
The knowledge gap in expanded newborn screening: Survey results from paediatricians in Massachusetts
Journal of Inherited Metabolic Disease -
Grant Abstract
Impact of Psychiatric Genetic Data on Civil Litigation and its Relationship with Stigma
Advances in psychiatric genetics are likely to offer major diagnostic and therapeutic benefits, but also legal and social-related risks, to individuals who were diagnosed with, or have a proclivity…- Address
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- Attitude
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Video
Exploring Complexity in the Biology Classroom: Beyond Mendel: Leading with Complexity when Teaching Human Genetics
Date: May 11 2023 3-4 pm PT / 6-7 pm ET Teaching Mendelian patterns of inheritance is a useful way to introduce basic genetic concepts in the classroom. However, this framework can be unhelpful or…- biology education
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Publication
Genetic information, non-discrimination, and privacy protections in genetic counseling practice
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): P50HG004488, U01HG006487, P50HG004488 -
Publication
Return of incidental findings in genomic medicine: Measuring what patients value--development of an Instrument to Measure Preferences for Information from Next-generation Testing (IMPRINT)
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG0006507-01, 265508 -
Publication
Science, society, and dismantling racism
Health EquityRoyal argues that “narrative change”, which involves advancing accurate and complete narratives about race and racism, is vital to dismantling the ideology and structures of racial hierarchy. -
Publication
Revisiting selected ethical aspects of current clinical in vitro fertilization (IVF) practice
Journal of Assisted Reproduction and Genetics -
Video
ELSIcon2022 Paper: The Ethical, Legal, and Social Implications of Stroke Genomic and Biobanking Research in Sub-Saharan Africa: Community Member Perspectives and Factors for Consideration
ELSIcon2022 • Paper • June 2, 2022 Michelle Nichols, Arti Singh, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Sylvia Melikam, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S…- Live
- Paper
- Attitudes about sharing biological samples and health data