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2101 - 2110 of 3998 Topics
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Publication
Return of genetic research results to participants and families: IRB perspectives and roles
Journal of Law, Medicine & Ethics -
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Publication
The disclosure of incidental genomic findings: An "ethically important moment" in pediatric research and practice
J Community Genet -
Publication
The knowledge gap in expanded newborn screening: Survey results from paediatricians in Massachusetts
Journal of Inherited Metabolic Disease -
Video
ELSIcon2022 Paper: The Ethical, Legal, and Social Implications of Stroke Genomic and Biobanking Research in Sub-Saharan Africa: Community Member Perspectives and Factors for Consideration
ELSIcon2022 • Paper • June 2, 2022 Michelle Nichols, Arti Singh, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Sylvia Melikam, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S…- Live
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- Attitudes about sharing biological samples and health data
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Grant Abstract
LawSeq: Building a Sound Legal Foundation for Translating Genomics into Clinical Application
This 3-year R01 based at the University of Minnesota and Vanderbilt University will convene a national Working Group of top legal and scientific experts to analyze current U.S. federal and state law…- Advisory Committees
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Publication
Genetic information, non-discrimination, and privacy protections in genetic counseling practice
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): P50HG004488, U01HG006487, P50HG004488 -
Publication
Processes and factors involved in decisions regarding return of incidental genomic findings in research
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R21 HG006596, R01 HG006600, P20 HG005535-02 -
Publication
Science, society, and dismantling racism
Health EquityRoyal argues that “narrative change”, which involves advancing accurate and complete narratives about race and racism, is vital to dismantling the ideology and structures of racial hierarchy. -
Publication
Revisiting selected ethical aspects of current clinical in vitro fertilization (IVF) practice
Journal of Assisted Reproduction and Genetics