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Publication
A vision for empirical ELSI along the R&D pipeline
AJOB Empirical BioethicsRajagopalan, Cakici, and Bloss envision a future in which empirical ELSI research is deployed early and continuously to align the goals of publicly funded science with local, public interests. -
Publication
Premature guidance about whole-genome sequencing
Per MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1R21HG00612-01 -
Publication
Hope versus reality: Parent expectations of genomic testing
Patient Educ CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1U01HG0096108 -
Publication
Development and early implementation of an Accessible, Relational, Inclusive and Actionable approach to genetic counseling: The ARIA model
Patient Educ CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): UM1HG007292, U01HG007307 -
Publication
Return of results in genomic biobank research: Ethics matters
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01-HG003178, 1-R01-CA154517, 69763 -
Publication
Eliciting preferences on secondary findings: The Preferences Instrument for Genomic Secondary Results
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): UM1 HG007301, R21 HG006612, UL1 TR000445 -
Video
ELSIcon2022 Flash: INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Flash • May 27, 2022 Alyx Vogle, Betty Cohn, Rebecca Ferber, Kerry Ryan, Gregory Feero, Debra Mathews, Anya Prince, Kayte Spector-Bagdady, Kunai Sanghavi, Wendy Uhlmann, Charles Lee…- Pre-Recorded
- Flash
- Stigma and discrimination
- Genetic testing and screening
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Grant Abstract
Developing Educational Approaches to Genomics for Mexican-Americans in East Los Angeles (HAPMAP Supplement)
The goal of this project is to collect cell samples from 40 trios of Mexican-American background for NHGRIs HapMap project, with cells being deposited at the Coriell Institute for Medical Research…- age difference
- Clinical Research
- community
- education evaluation /planning
- educationally disadvantaged
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Publication
Making pre-test genomic counseling optional: Lessons from the RAVE study
Genetics in Medicine -