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Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
The proposed project is a qualitative study of recruitment and retention into the All of Us Research Program (AoURP) at a federally qualified health center (FQHC). A key component of the NIH's…- African American
- All of Us Research Program
- Anxiety
- barrier to care
- care systems
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Publication
Human tissue samples and ethics -- attitudes of the general public in Sweden to biobank research
Medicine, Health Care and PhilosophyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Taking another look at the definition of an embryo: President Bush's criteria and the problematic application of federal regulations to human embryonic stem cells
Emory Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
A pilot assessment of parental practices and attitudes regarding risk disclosure and clinical research involving children in Huntington disease families.
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Fresh or frozen? Classifying 'spare' embryos for donation to human embryonic stem cell research
Social science & medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Handbook of genome research: Genomics, proteomics, metabolomics, bioinformatics, ethical and legal issues
Wiley-VCHDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Cells and surveys: Should biological measures be included in social science research?
National Academy PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical issues in human stem cell research, volume I: Report and recommendations of the national bioethics advisory commission
National Bioethics Advisory CommissionDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Intellectual property and biotechnology: The U.S. internal experience -- Part II
Kennedy Institute of Ethics JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Evaluation of biobank constitution and use: Multicentre analysis in France and propositions for formalising the activities of research ethics committees
European Journal of Medical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…