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Publication
Health behaviors among unaffected participants following receipt of variants of uncertain significance in cardiomyopathy-associated genes
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): HG200387 04 -
Publication
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Frontiers in GeneticsCarroll and colleagues analyze the content of research governance documents from 26 U.S. tribal communities and recommend the addition of explicit requirements for benefit sharing. -
Video
Exploring Difference in the Biology Classroom: How to represent wide-ranging family structures and personal identities using the latest pedigree nomenclature
Co-Moderators: Marnie Gelbart, PhD (pgEd) & Robin Bowman, MEd (pgEd) Presenters: Ina Amarillo, PhD & Robin Bennett, MS, LGC, ScD Hon Pedigrees are a widely used tool in medicine,…- Pedigree
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Job Posting
Clinical Ethicist
The Clinical Ethicist contributes to initiatives that support the continuing evolution of integrated ethics programming at Children’s Health System of Texas (CHST). The incumbent is responsible for…- Clinical Ethics
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Grant Abstract
Views and Approaches Toward Research Integrity Among IRBs
IRBs can play vital roles in observing and responding to research integrity (Rl) issues among principal investigators (Pis), yet how these boards view and approach these roles has not been seriously…- Clinical Research
- conflict
- Education
- Interview
- Leadership
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Video
ELSIcon2022 Paper: Willingness towards re-use of donated biosamples for stroke genomic research among West African stroke patients and stroke-free individuals
ELSIcon2022 • Paper • May 27, 2022 Olorunyomi Olorunsogbon, Muyiwa Adigun, Babatunde R. Ojebuyi, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S. Sarfo, Lukman F. Owolabi, Rabiu Musbahu,…- Attitudes about sharing biological samples and health data
- global health
- Paper
- Pre-Recorded
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Grant Abstract
Managing Incidental Findings in the Genomic Era
Disclosing the prospect or discovery of genomic IFs to clinical patients or prospective research subjects is an area fraught with ethical, legal, social, and practical challenges. These challenges…- Area
- Behavior
- behavior change
- Behavioral
- Bioethics
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Grant Abstract
Microbiome-Based Diagnostics: Stakeholder Perceptions and Implications for the Regulatory Framework
The state of knowledge regarding the human microbiome is advancing rapidly and a burgeoning new area of research and development is microbiome-based diagnostics. There is much that is not yet known…- Award
- Baltimore
- base
- Benefits and Risks
- Bioethics Consultants
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Publication
Artificial intelligence and cancer care in Africa
Journal of Medicine, Surgery, and Public Health -
Publication
Global regulatory policies for animal biotechnology: Overview, opportunities and challenges
Frontiers in Genome Editing