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Grant Abstract
Genetic Research and the Navajo Nation: Context of and Attitudes to the Moratorium
The Navajo Nation placed a moratorium on genetic research studies in 2002, yet the tribe has high rates of genetic diseases and disorders. Historical distrust, fears of exploitation, and limited…- Attitude
- biomedical scientist
- Communities
- Community Consents
- Disease
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Collection
Human Gene Editing and the Ethics of Enhancement
Over the past decade, a new generation of precise and efficient gene editing techniques has brought new urgency and attention to the discussion of the ethics of human enhancement. In 2015, gene…- Genetic Enhancement
- human genome editing governance
- Eugenics
- Health Equity
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News
ELSIhub Resources for Genetic Counselors
ELSIhub strives to provide our audiences with scholarship, educational content, webinars, community news, and resources focused on the ethical, legal, and social implications (ELSI) of genetics and… -
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Publication
CanDIG: Federated network across Canada for multi-omic and health data discovery and analysis
Cell Genomics -
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Publication
AMP v. Myriad: A surgical strike on Blockbuster business models
Sci Transl MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Studying the impact of translational genomic research: Lessons from eMERGE
American Journal of Human GeneticsClayton and colleagues describe ethical and logistical challenges encountered by the Electronic Medical Record and Genomics (eMERGE) Network and share recommendations for future studies, such as… -
Publication
Reasons for declining preconception expanded carrier screening using genome sequencing
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): UM1HG007292, U01HG007307