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221 - 230 of 2126 Topics
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Publication
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
Journal of Empirical Research on Human Research Ethics -
Publication
Rethinking the importance of the individual within a community of data
Hastings Center Report -
Publication
Lessons learned from community-based participatory research in Indian country
Cancer Control -
Grant Abstract
Indian Perspectives on Human Genetic Variation Research (HAPMAP)
This project will engage members of Indian communities in the Houston metropolitan area to elicit their perspectives on genetic research and the International HapMap Project. The project will involve…- Attitude
- behavioral /social science research tag
- Belief
- Clinical Research
- community
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Publication
Sample genetic policy language for research conducted with native communities
J Cancer Educ -
Publication
Employing effective recruitment and retention strategies to engage a diverse pediatric population in genomics research
Am J Hum Genet.by Michelle A. Ramos, Katherine E. Bonini, Laura Scarimbolo, Nicole R. Kelly, Beverly Insel, Sabrina A. Suckiel, Kaitlyn Brown, Miranda Di Biase, Katie M. Gallagher, Jessenia Lopez, Karla López… -
Publication
The relationship between the genetic counseling profession and the disability community: A commentary
American Journal of Medical Genetics -
Publication
Developing a national newborn genomes program: An approach driven by ethics, engagement and co-design
Frontiers in Genetics -
Publication
Ethical issues in developing pharmacogenetic research partnerships with American Indigenous communities
Clinical Pharmacology and Therapeutics -
Publication
Systematizing genome privacy research: A privacy enhancing technologies perspective
Proceedings on Privacy Enhancing TechnologiesThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009019