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Regulation of genomic and biobanking research in Africa: A content analysis of ethics guidelines, policies and procedures from 22 African countries

BMC Medical Ethics

de Vries, Jantina, Munung, Syntia Nchangwi, Matimba, Alice, McCurdy, Sheryl, Oukem-Boyer, Odile Ouwe Missi, Staunton, Ciara, Yakubu, Aminu, Tindana, Paulina, H3Africa Consortium

2017

Publication

Reducing disparities in receipt of genetic counseling for underserved women at risk of hereditary breast and ovarian cancer

Journal of Women's Health

Sutton, Arnethea L., Hurtado-de-Mendoza, Alejandra, Quillin, John, Rubinsak, Lisa, Temkin, Sarah M., Gal, Tamas, Sheppard, Vanessa B.

2021

Publication

Incorporating biobank consent into a healthcare setting: Challenges for patient understanding

AJOB Empirical Bioethics

Kasperbauer, T. J., Schmidt, Karen K., Thomas, Ariane, Perkins, Susan M., Schwartz, Peter H.

2021

Publication

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations

PLOS ONE

Bridges, Celina, Duenas, Devan M., Lewis, Hannah, Anderson, Katherine, Opel, Douglas J., Wilfond, Benjamin S., Kraft, Stephanie A.

2021

Publication

Genetic research and culturally specific risks: One size does not fit all

Trends Genet

Morris W. Foster, Richard R. Sharp

2000

Publication

Public perceptions of international genetic information sharing for biomedical research in China: A case study of the social media debate on the article “A Pangenome Reference of 36 Chinese Populations” published in Nature

Human Genomics

Zhangyu Wang, Meng Wang, Li Du

2024

Publication

Private payer and Medicare coverage for circulating tumor DNA testing: A historical analysis of coverage policies from 2015 to 2019

J Natl Compr Canc Netw

Douglas, M. P., Gray, S. W., Phillips, K. A.

2020

Clinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01 CA221870, U01 HG009599

Publication

Pediatric Reporting of Genomic Results Study (PROGRESS): A mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents

BMC Pediatr

Juliann M. Savatt, Jennifer K. Wagner, Steven Joffe, Alanna Kulchak Rahm, Marc S. Williams, Angela R. Bradbury, F. Daniel Davis, Julie Hergenrather, Yirui Hu, Melissa A. Kelly, H. Lester Kirchner, Michelle N. Meyer, Jessica Mozersky, Sean M. O’Dell, Josie Pervola, Andrea Seeley, Amy C. Sturm, Adam H. Buchanan

2020

Job Posting

Postdoctoral Research Fellowship

The Institute for Bioethics & Health Humanities (IBHH) at the University of Texas Medical Branch (UTMB) invites applications for Postdoctoral Research Fellows as part of our Visiting Scholars…

Fellowship
Substance Use Disorder
Translational Research
Health Humanities
Environmental Health

Grant Abstract

Ethical Issues in International Health Research

This is a project of the Harvard School of Public Health in collaboration with Tufts University Medical School; Instituto Nacional de Salud Publica, Cuernavaca, Mexico; The University of Natal School…

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Regulation of genomic and biobanking research in Africa: A content analysis of ethics guidelines, policies and procedures from 22 African countries

Reducing disparities in receipt of genetic counseling for underserved women at risk of hereditary breast and ovarian cancer

Incorporating biobank consent into a healthcare setting: Challenges for patient understanding

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations

Genetic research and culturally specific risks: One size does not fit all

Public perceptions of international genetic information sharing for biomedical research in China: A case study of the social media debate on the article “A Pangenome Reference of 36 Chinese Populations” published in Nature

Private payer and Medicare coverage for circulating tumor DNA testing: A historical analysis of coverage policies from 2015 to 2019

Pediatric Reporting of Genomic Results Study (PROGRESS): A mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents

Postdoctoral Research Fellowship

Ethical Issues in International Health Research

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