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Publication
US court challenge may limit use of data in DNA banks
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Religion and human cloning: An exploratory analysis of the first available opinion data
Journal for the Scientific Study of ReligionDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
US/UK statement on genome data prompts debate on "free access"
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Protection of genetic data in medical genetics: A legal analysis in the European context
Law and the Human Genome ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Data protection in biobanks--a European challenge for the long-term sustainability of biobanking
Law and the human genome reviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Paper: Mapping Diversity and Equity in Precision Medicine Research: Towards an Ethics of Inclusion
ELSIcon2022 • Paper • June 1, 2022 Sandra Soo-Jin Lee and Janet Shim on behalf of Ethics of Inclusion Study Team This paper draws on our study that takes a research ‘lifecourse’ perspective to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Additional Resource
Reproducibility Collection, the National Academies of Sciences, Engineering, and Medicine (NASEM)
This collection of National Academies Press publications includes consensus study reports and workshop proceedings on topics related to reproducibility and replicability in science, including open…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Research ethics: Policy on DNA research troubles tissue bankers
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Stem cell research as innovation: Expanding the ethical and policy conversation
The Journal of law, medicine & ethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -