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Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal genetic services have expanded at an extraordinary pace over the past 4 years with the development of fetal genome sequencing using cell-free placental DNA in maternal serum. Some…- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists
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Publication
Incorporating user feedback in the design of a genetics analysis tool: A two-part approach
Journal of Biomedical Informatics -
Additional Resource
Workshop Proceedings, Trust and Confidence at the Interfaces of the Life Sciences and Society: Does the Public Trust Science?, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2015)
This National Academies of Sciences, Engineering, and Medicine report explores public opinion and attitudes toward the life sciences, the role of various stakeholders in promoting public trust in…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Multi-gene pharmacogenomic testing that includes decision-support tools to guide medication selection for major depression: A health technology assessment
Ontario Health Technology Assessment Series -
Publication
Patient priorities for fulfilling the principle of respect in research: Findings from a modified Delphi study
BMC Medical EthicsParticipants in this study by Kraft, Duenas, and Shah said informed consent and interpersonal interactions were most important to their experience of respect in the research context. -
Publication
Retrospective assessment of barriers and access to genetic services for hereditary cancer syndromes in an integrated health care delivery system
Hered Cancer Clin PractClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG007292, U01HG007307 -
Publication
Preparing newborn screening for the future: A collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system
BMC PediatricsThe future of newborn screening (NBS) will depend on the ability of the current system to adapt to increased demands resulting from advances in gene therapies. Andrews and colleagues convened NBS… -
Additional Resource
Reproducibility Collection, the National Academies of Sciences, Engineering, and Medicine (NASEM)
This collection of National Academies Press publications includes consensus study reports and workshop proceedings on topics related to reproducibility and replicability in science, including open…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding