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Grant Abstract
A Risk Management Framework for Identifiability in Genomics Research
When the Human Genome Project was completed almost ten years ago it cost millions of dollars to sequence an individual's genome. Yet, the evolution of high-throughput sequencing and…- Academic Medical Centers
- Address
- Adopted
- Agreement
- Back
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Collection
Ethical Challenges in Obtaining Informed Consent for Genetic/Genomic Research
Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic research are considerations to be disclosed by researchers and…- Informed Consent
- Genetic Research
- research oversight
- Broad Consent
- Communication
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Publication
Negative results from DNA-based population screening for adult-onset diseases: The recipients' experience
Journal of Community Geneticsby Felicia Russo, Debanjana Chatterjee, Natalia DeMaria, Michelle E. Florido, Maddalena Marasa, Maya Sabatello, Julia Wynn, & Hila Milo Rasouly -
Publication
Stakeholders' opinions on the implementation of pediatric whole exome sequencing: Implications for informed consent
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG006546-01 -
Publication
"Is that something that should concern me?": A qualitative exploration of parent understanding of their child's genomic test results
HGG AdvClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1U01HG009610 -
Publication
What are people willing to pay for whole-genome sequencing information, and who decides what they receive?
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01HG007063, 5P30CA082013-15, U01-HG006500 -
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Publication
Caveats on human cognitive enhancement technologies based on the sociocultural context of Singapore
Journal of Medical Ethics -
Publication
Demonstrated consent and the common good: On withdrawal of consent in stem cell research
The American Journal of Bioethics -
Publication
Ethical layering in AI-driven polygenic risk scores—New complexities, new challenges
Frontiers in Genetics