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Grant Abstract
Public Perspectives and Experience Regarding Genetic Ancestry Testing
Personal genetic and genomic information is becoming more widely available and affordable, generating increased discussions on the merits and dangers of direct-to-consumer (DTC) genetic testing and…- Advocacy
- Affect
- Attention
- Attitude
- Awareness
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Publication
Views on data use, confidentiality and consent in a predictive screening involving children
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Access to stem cells and data: Persons, property rights, and scientific progress
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Racial hygiene and deliberate parenthood: Two sides of demographer Hans Harmsen's population policy
Issues In Reproductive and Genetic EngineeringDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Tissue banking, patient rights, and confidentiality: Tensions in law and policy
Medicine and Law: World Association for Medical LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Blood & data: Ethical, legal and social aspects of human genetic databases
University of Iceland PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The science commons in health research: Structure function and value
Journal of Technology TransferDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Grant Abstract
Community-Based Evaluation of APOL1 Genetic Testing in African Americans
Endstage renal disease (ESRD) or kidney failure affects over 500,000 persons in the United States and disproportionately affects racial and ethnic minority populations. Compared to whites, African…- advocacy organizations
- Affect
- African American
- Age
- Anxiety
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Additional Resource
Ethics Committee Opinion, Interests, Obligations, and Rights in Gamete and Embryo Donation, American Society for Reproductive Medicine (ASRM)
This ASRM Ethics Committee Report published in 2019 highlights the need for shared information in the consent process, addresses preferences expressed by donors over who should receive their gametes…- ethics committee opinion
- embryo donation
- gamete donation
- American Society for Reproductive Medicine
- ASRM