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Publication
Biobanks containing clinical specimens: Defining characteristics, policies, and practices
Clin BiochemClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1R01HG005227-01A1, 5UL1RR025747-04S1, U54RR024382-01A1, P50 HG004488 -
Publication
Sample genetic policy language for research conducted with native communities
J Cancer Educ -
Research Tool
CSER Phase 2 Provider Return of Results Follow-up #1 Survey
CSER Phase 2 Provider Return of Results Follow-up #1 Survey is administered 0-6 weeks post-return of results to providers of research participants that were returned positive, negative, VUS, and… -
Publication
Correlates of intentions to obtain genetic counseling and colorectal cancer gene testing among at-risk relatives from three ethnic groups
Cancer Epidemiol Biomarkers Prev -
Publication
Reverse-FOIA limitations on agency actions to disclose human gene therapy clinical trial data
Food and Drug Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Grant Abstract
Internet Intervention For BRCA1/BRCA2 Uninformatives
Genetic testing for BRCA1 and BRCA2 (BRCA1/2) mutations is part of routine clinical care for women with a family history of breast or ovarian cancer. However, a mutation in these genes is not…- Anxiety
- base
- Behavior
- Behavioral
- BRCA1 gene
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Publication
Developing a national implementation strategy for enhancing the detection of familial hypercholesterolemia: An Australian experience
Journal of Clinical Lipidology -
Additional Resource
Maryland 2020 State Bills (Maryland 2020 HB 1122)
Requires the University of Maryland to develop and adopt an information security and risk management program for the protection of personally identifiable information. Personally identifiable…- state bill
- bill
- bill status enacted
- Maryland
- genetic privacy