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2321 - 2330 of 7274 Topics
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Publication
Machine learning-generated clinical data as collateral research: A global neuroethical analysis
The American Journal of Bioethics -
Publication
Harmonizing HTA evidence needs and expectations: Challenges and opportunities to improve evidence generation, ensure access and affordability
Clinical Pharmacology & Therapeutics -
Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy--especially genomic results for adult-onset conditions that are not…- Adolescent
- Adolescent Development
- Adult
- Affect
- Anxiety
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Additional Resource
California 2009 State Bills (California 2009 AB 1543)
This bill specifies that money from the genetic disease testing fund may be used for costs related to data management, and newborn blood collection, storage, retrieval, processing, inventory, and…- state bill
- bill
- genetic disease
- genetic disease testing fund
- data management
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Publication
Bankruptcy, genetic information, and privacy - Selling personal information
New England Journal of Medicineby Sara Gerke, Melissa B. Jacoby, & I. Glenn Cohen -
Publication
Examining the public refusal to consent to DNA biobanking: Empirical data from a Swedish population-based study
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Should failure to disclose significant financial conflicts of interest be considered research misconduct?
JAMAUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Inclusivity and diversity: Integrating international perspectives on stem cell challenges and potential
Stem Cell Reports -