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Grant Abstract
Genomics in the Clinic: Identity, Responsibility and Choice
Recent progress in genomic science has been accompanied by great expectations that we are on the verge of a medical revolution where genetic knowledge of the complex interaction between multiple…- Attention
- authority
- Behavioral
- Caring
- Chronic Disease
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Additional Resource
Consensus Study Report, Cutting Edge Technologies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1984)
This National Academies Press publication is a collection of papers by engineering experts. Each paper introduces a promising technological advance in computers, biotechnology, structural materials,…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Controlled trial of pretest education approaches to enhance informed decision-making for BRCA1 gene testing
J Natl Cancer Inst -
Publication
Controlled trial of pretest education approaches to enhance informed decision-making for BRCA1 gene testing
Journal of the National Cancer Institute -
Additional Resource
California State Statute (California: Cal. Civil Code §56.17)
A person who negligently or willfully discloses genetic test results in an individual's medical records who is applying for or enrolled in a health care service plan, except with written…- state statute
- statute
- genetic test
- genetic test results
- California
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Additional Resource
Maine 2017 State Bills (Maine 2017 LD 1279)
In amended version, prohibits pre-existing condition exclusions in individual health plans but removes text referring to genetic information. Allows restricted enrollment in individual health plans…- state bill
- bill
- bill status died
- Maine
- health insurance nondiscrimination
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Additional Resource
Workshop Proceedings, Indo-U.S. Workshop on Challenges of Emerging Infections and Global Health Safety, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This report summarizes the proceedings of a workshop hosted by the National Academy of Sciences and Indian National Science Academy in November 2014. The workshop explored global issues related to…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Assessing Genetic Risks: Implications for Health and Social Policy, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1994)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts charged with investigating several issues associated with…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Cord Blood: Establishing a National Hematopoietic Stem Cell Bank Program, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2005)
This National Academies Press publication offers advice from experts in the fields of economics, public health, medicine, and biostatistics on the optimal structure for a national cord blood program…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding