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Workshop Proceedings, The Learning Healthcare System, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2007)
This National Academies Press publication summarizes the proceedings of a workshop that explored issues associated with the creation of a sustainable learning health care system. The workshop was…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Conceptions of Race and Ethnicity Used in Gene-Environment Interaction Studies
This qualitative, ethnographic project addresses a "Grand Challenge" for the future of genomic research and a NHGRI ELSI Research Program priority area: the analysis of the impact of…- Applications Grants
- Area
- Area Analyses
- base
- Behavioral Genetics
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Additional Resource
Working Group Summaries, The Genomic Revolution: Implications for Treatment and Control of Infectious Disease, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2006)
This publication summarizes the proceedings of the conference, “The Genome Revolution: Implications for Treatment and Control of Infectious Disease.” Organizers challenged 11 conference working…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Opportunities for Organ Donor Intervention Research: Saving Lives by Improving the Quality and Quantity of Organs for Transplantation, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2017)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on the ethical, legal, regulatory, policy, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Contraceptive Research and Development: Looking to the Future, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1996)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on scientific prospects for new contraceptive development and private sector participation…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, Exploring Novel Clinical Trial Designs for Gene-Based Therapies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2019)
This National Academies Press publication summarizes the proceedings of workshop on ethical issues in clinical trials for gene therapies. This workshop was convened by the Forum on Regenerative…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Attitudes Regarding Prenatal and Preimplantation Genetic Diagnosis For Inherited
A significant proportion of patients who pursue testing for BRCA gene alterations are of reproductive age. Many are actively engaged in decisions about family planning or will be in the future. A…- American Society of Clinical Oncology
- Amniocentesis
- Assisted Reproductive Technology
- Attitude
- Autosomal Dominant Polycystic Kidney
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Video
ELSIcon2022 Panel: How does Genetics and Racial Disparities influence Stillbirth Risk and Reoccurrence?
ELSIcon2022 • Panel • May 27, 2022 Tsegaselassie Workalemahu, Sarah Heerboth, Naomi, Riches, Erin Rothwell Stillbirths account for most perinatal deaths and almost half of them are attributed to an…- Uptake of genetic testing
- Genetic testing and screening
- Panel
- Pre-Recorded
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Additional Resource
Workshop Proceedings, Public Engagement and Clinical Trials: New Models and Disruptive Technologies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2012)
This National Academies Press publication summarizes the proceedings of a workshop that explored solutions to increase public engagement in the U.S. clinical trials enterprise. The workshop was…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
New Mexico 2013 State Bills (New Mexico 2013 HB 168)
Prohibits pre-existing condition exclusions in qualified health plans in the New Mexico Health Insurance Exchange Act. Genetic information is not included as a preexisting condition for the purposes…- state bill
- bill
- bill status died
- New Mexico
- health insurance nondiscrimination