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California 2011 State Bills (California 2011 SB 559)
This bill, referred to as CalGINA, prohibits discrimination based on genetic information in several areas in addition to those addressed by existing law, including in housing, at certain business…- state bill
- bill
- California
- genetic information
- genetic discrimination
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New Mexico 2013 State Bills (New Mexico 2013 HB 366)
An individual or group health insurance policy, health care plan or certificate of health insurance that is delivered or issued for delivery in New Mexico must provide certain benefits that have, in…- state bill
- bill
- bill status died
- New Mexico
- health insurance coverage
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Publication
Practical guidance on informed consent for pediatric participants in a biorepository
Mayo Clin ProcClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006828, U01HG006830, U01HG006389, U01HG006382, U01HG006375, U01HG006379, U01HG006380, U01HG006388,… -
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Consensus Study Report, Responsible Science: Ensuring the Integrity of the Research Process: Volume I, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1992)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on integrity in science following a 2-year study. It outlines the findings, conclusions, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Consensus Study Report, Health Standards for Long Duration and Exploration Spaceflight: Ethics Principles, Responsibilities, and Decision Framework, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
This publication reports the conclusions and recommendations of a committee of experts convened by the Institute of Medicine of the National Academies (IOM) to develop an ethics framework for…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Oklahoma 2010 State Bills (Oklahoma 2010 SB 1961)
This bill (in amended version) prohibits discrimination based on genetic information in employment. Vetoed by the Governor June 10, 2010. Bill Status: Vetoed- state bill
- bill
- bill status vetoed
- Oklahoma
- employment nondiscrimination
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Additional Resource
Workshop Proceedings, Next Steps for Functional Genomics, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2020)
This National Academies Press publication summarizes the proceedings of a workshop that explored the research needs to advance the field of functional genomics. The workshop was convened by the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Biomarker Tests for Molecularly Targeted Therapies, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on the development and use of biomarker tests to select optimal therapies. It outlines the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Michigan 2016 State Bills (Michigan 2016 HB 5769)
Amends the state genetic privacy law. Changes in introduced version of bill only involve unsubstantial changes in wording of text. Died. Bill Status: Died- state bill
- bill
- bill status died
- Michigan
- genetic privacy
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Additional Resource
Glossary of Genomics Terms, The Journal of the American Medical Association (JAMA)
The Journal of the American Medical Association produced this Glossary of Genomics Terms in 2013. The glossary includes terms commonly used in the study of genetics compiled using information…- genetic terms glossary
- glossary
- JAMA
- learning tool
- genomic terms