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Workshop Proceedings, Military Medical Ethics: Issues Regarding Dual Loyalties, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2008)
This National Academies Press publication summarizes a one-day workshop, Military Medical Ethics: Issues Regarding Dual Loyalties, convened by the Institute of Medicine of the National Academies on…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
New York 2019 State Bills (New York 2019 S6448)
Amends the public health law, in relation to authorizing human research in compliance with federal law. 9/13/2019 Signed by the Governor. Bill Status: Enacted- state bill
- bill
- bill status enacted
- New York
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Mississippi 2016 State Bills (Mississippi 2016 SB 2775)
Enacts the Parents Matter Act. Parental rights include the right to be notified in advance and to refuse or to consent in writing before any record of the minor child's blood or deoxyribonucleic…- state bill
- bill
- bill status died
- Mississippi
- genetic privacy
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Workshop Proceedings, Exploring the Current Landscape of Consumer Genomics, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2020)
This National Academies Press publication summarizes the proceedings of a workshop that explored the impact of consumer genomics on health literacy, its use in clinical care, regulatory issues, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Delaware State Statute (Delaware: Del. Code 18 §2317 )
Discrimination is prohibited in the issuance, denial or renewal of or in the fixing of the rates, terms or conditions for health insurance, excluding disability or long-term care insurance. The law…- state statute
- statute
- Delaware
- Discrimination
- genetic information
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Mississippi 2016 State Bills (Mississippi 2016 HB 985)
Creates the parental authority act. Parental rights include the he right to be notified in advance and to refuse or to consent in writing before any record of the minor child's blood or…- state bill
- bill
- bill status died
- Mississippi
- genetic privacy
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Additional Resource
Ethics Committee Opinion, Use of Preimplantation Genetic Testing for Monogenic Defects (PGT-M) for Adult-onset Conditions, American Society for Reproductive Medicine (ASRM)
This ASRM Ethics Committee opinion published in 2018 offers key points to consider in the determination of the ethical permissibility of PGT-M for adult-onset conditions.- ethics committee opinion
- preimplantation genetic testing
- PGT
- monogenic defects
- American Society for Reproductive Medicine
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Publication
Returning individual research results to “vulnerable” individuals
The American Journal of Pathology -
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Consensus Study Report, Biomedical Politics, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1991)
This volume includes six case studies (deoxyinosine (ddI), RU-486, Medicare coverage for victims of chronic kidney failure, the human genome project, fetal tissue transplantation, and the 1975…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Reaping the Benefits of Genomic and Proteomic Research: Intellectual Property Rights, Innovation, and Public Health, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2006)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on patenting and licensing of human genetic material. It outlines the findings, conclusions…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding