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Publication
Flexible positions, managed hopes: The promissory bioeconomy of a whole genome sequencing cancer study
Social Science & Medicine -
Grant Abstract
Returning Individual Genetic Research Results to Parents and Children
The mapping of the human genome has allowed researchers to discover new relationships between genotype and phenotype, and has provided the basis for genome-informed medical decision-making that will…- Adverse effects
- Area
- Attitude
- Autistic Disorder
- Back
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Publication
Flexible positions, managed hopes: The promissory bioeconomy of a whole genome sequencing cancer study
Soc Sci MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 2P50HG004488, U01HG006487 -
Grant Abstract
Center for ELSI Research on Psychiatric Neurologic and Behavioral Genetics
Research on the genetics of Psychiatric, Neurologic, and Behavioral (PNB) phenotypes reveals a panorama of complexity that creates several challenges: 1) the data are difficult for clinicians to…- Affect
- Area
- base
- Behavior Disorders
- Behavioral
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Publication
Equity in cancer genomics in the UK: A cross-sectional analysis of a national cancer cohort
The Lancet Oncology -
Collection
Ethical Challenges in Obtaining Informed Consent for Genetic/Genomic Research
Obtaining informed consent (IC) for genetic/genomic research is complicated because most of the ethical issues associated with genetic research are considerations to be disclosed by researchers and…- Informed Consent
- Genetic Research
- research oversight
- Broad Consent
- Communication
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Grant Abstract
Secondary Uses of Health Information: Patient Preferences for Sharing and Consent
Health information technology (HIT) is believed to be central to improving the quality and cost effectiveness of health care in the United States. As a result of recent major federal investment, the…- Address
- American
- Belief
- Caring
- Clinical
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Video
Exploring Difference in the Biology Classroom: How to represent wide-ranging family structures and personal identities using the latest pedigree nomenclature
Co-Moderators: Marnie Gelbart, PhD (pgEd) & Robin Bowman, MEd (pgEd) Presenters: Ina Amarillo, PhD & Robin Bennett, MS, LGC, ScD Hon Pedigrees are a widely used tool in medicine,…- Pedigree
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Grant Abstract
Family as Context for Clinical Genetics
The Family as Context in Clinical Genetics Project (FCCGP) is an innovative Web-based curriculum that focuses on the integration of the new genetic knowledge into clinical practice and uses the…