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Grant Abstract
Nanodiagnostics and Nanotherapeutics: Building Research Ethics and Oversight
The ability to manipulate atoms and molecules at the nanoscale has catalyzed the emerging field of nanomedicine. While many biological phenomena occur at the nanoscale, "nanomedicine"…- Advisory Committees
- animal data
- Archives
- Area
- authority
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Additional Resource
New Mexico 2013 State Bills (New Mexico 2013 SB 445)
Enacts the Uniform Protection of Genetic Information in Employment Act. The bill also amends the Genetic Information Privacy Act. Died in Consumer and Public Affairs Committee. Bill Status: Died- state bill
- bill
- bill status died
- New Mexico
- employment nondiscrimination
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Publication
Why fairness cannot be automated: Bridging the gap between EU non-discrimination law and AI
Computer Law & Security Review -
Additional Resource
Maryland State Statute (Maryland: Md. Insurance Code §27-208)
Unless there is actuarial justification, an insurer may not refuse to insure or make or allow a differential in ratings, premium payments, or dividends in connection with life insurance and annuity…- state statute
- Maryland
- actuarial justification
- sickle-cell trait
- diseases
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Additional Resource
Oregon 2007 State Bills (Oregon 2007 HB 3341)
This bill creates the Oregon Health Insurance Exchange and prohibits the treatment of genetic information in the absence of a diagnosis as a pre-existing condition in the exchange. Measure failed.…- state bill
- bill
- bill status died
- Oregon
- health insurance nondiscrimination
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Additional Resource
Mississippi 2012 State Bills (Mississippi 2012 HB 497)
In the group health market genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. Measure failed. Bill…- state bill
- bill
- bill status died
- Mississippi
- health insurance nondiscrimination
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News
Ethical Issues in Pediatric Gene Therapy Clinical Trials
The Working Group on Pediatric Gene Therapy and Medical Ethics (PGTME) was created in 2019 to study ethical issues surrounding research in genetic interventions for pediatric populations. The group…- pediatric gene therapy
- Pediatric Research
- Informed Consent
- Research Ethics
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Additional Resource
The European Society of Human Genetics (ESHG)
The European Society of Human Genetics (ESHG), a non-profit organization, aims to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and…- ESHG
- non-profit organization
- applied medical genetics
- clinical practice standards
- Europe
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Additional Resource
Oklahoma 2010 State Bills (Oklahoma 2010 SB 2054)
This bill modifies the state Genetic Information Nondiscrimination in Insurance Act. Topics addressed by the modifications include definitions, discrimination in health insurance based on genetic…- state bill
- bill
- bill status enacted
- Oklahoma
- health insurance nondiscrimination