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Publication
The right not to know: Non-disclosure of primary genetic test results and genetic counselors' response
Journal of Genetic Counseling -
Publication
The history and challenges of women in genetics: A focus on non-Western women
Frontiers in Genetics -
Publication
The full spectrum of ethical issues in pediatric genome-wide sequencing: A systematic qualitative review
BMC Pediatrics -
Publication
Commentary on "My Story: A Genetic Counselor's Journey from Provider to Patient"
Journal of Genetic Counseling -
Publication
Looking to the past: Soma, magical thinking and the implications of the new genetics commentary on Stowe et al.
Journal on Developmental Disabilities -
Publication
Disclosing pleiotropic effects during genetic risk assessment for Alzheimer disease: A randomized trial
Ann Intern MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): HG002213, HG006500, HD077671, HG006993, AG013846, RR000533, RR010284, TR001102 -
News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
Collection
The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly… -
Grant Abstract
Human Geneticists' Practices Preferences and Beliefs about Biobanks and Large Cohort Studies
Biobanks that collect and store participants' clinical and genetic information have become important tools in genomic research, disseminating data to a large number of investigators conducting…- American
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