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Publication
Video education about genetic privacy and patient perspectives about sharing prenatal genetic data: a randomized trial
American Jouenal of Obstetrics Gynecology -
Publication
A systematic literature review of the ‘commercialisation effect’ on public attitudes towards biobank and genomic data repositories
Public Understanding of Science -
Publication
Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: Guidance for policy
Canadian Medical Association Journal -
Research Tool
Data Sharing Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
This 29 second video provides information for American Indian and Alaska Native participants about the construction of public and scientific databases of participant data by the All of Us Research… -
Publication
Pragmatic tools for sharing genomic research results with the relatives of living and deceased research participants
The Journal of Law, Medicine & Ethics -
Publication
Pragmatic tools for sharing genomic research results with the relatives of living and deceased research participants
J Law Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1R01CA154517 -
Publication
Immortal data: A qualitative exploration of patients’ understandings of genomic data
European Journal of Human GeneticsLyle and colleagues analyze how patients and their relatives conceptualize the “immortality” of genomic data. They find that participants focus on the simplicity of providing a sample instead of the… -
Publication
Managing incidental findings in human subjects research: Analysis and recommendations
J Law Med Ethics