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241 - 250 of 2126 Topics
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Publication
Ethical and equitable digital health research: Ensuring self-determination in data governance for racialized communities
Cambridge Quarterly of Healthcare Ethics -
Video
May 2024 ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned
Health research is undergoing a gradual but transformative shift, where patients and study communities no longer want to be passive participants in health research but active collaborators. However,…- ELSI
- Sickle Cell
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Publication
Genetic education to ethnically diverse communities: A community empowerment model
American Journal of Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Community consent for genetic research
Nature Pub. GroupDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Panel: Extending the Belmont Principles: Sovereignty and Solidarity in Genomic Research
ELSIcon2022 • Panel Session 2 • May 31, 2022 Vanessa Hiratsuka, Bobby Saunkeah, Joon-Ho Yu, Alize Ece Gunay, Krystal Tsosie The Belmont principles of respect for persons, beneficence, and…- Live
- Panel
- Community oversight of research
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Publication
Place, priestly status and purity: The impact of genetic research on an Indian Jewish community
Dev World Bioeth -
Publication
Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities
American Indian and Alaska Native Mental Health Research -
Publication
Perspectives on genetic research: Results from a survey of Navajo community members
Frontiers in Genetics -
Publication
Is there a genetic susceptibility to engage in criminal acts?
Trends and Issues in Crime and Criminal JusticeDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa
ELSIcon2022 • Paper • June 2, 2022 Erin Burke, Michèle Ramsay, June Fabian Genetics researchers have earned the label “extractive biocolonialists” because they collect samples and fail to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks