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Patenting and Licensing in Genomics: Impact on Access to Genetic Tests and Debates about Patenting in the Public Interest
Intellectual property rights, such as patents, award inventors a temporary (generally 20-year) right to exclude others from making, using, selling, or importing their invention. They are granted to…- Myriad
- gene patent
- Intellectual Property
- Public domain
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News
ELSI in Review • July 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2023 set explores digital interventions for genomics… -
News
ELSI in Review • December 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2022 set explores fertility preservation for… -
News
A Glimpse into My ELSI Journey
In this Trainee Spotlight article, Sheethal Jose, a doctoral student at Johns Hopkins Bloomberg School of Public Health and the Berman Institute of Bioethics shares with us her research… -
Publication
Health data sharing attitudes towards primary and secondary use of data: A systematic review
eClinicalMedicine -
Publication
From late fatherhood to prenatal screening of monogenic disorders: Evidence and ethical concerns
Human Reproduction Update -
News
ELSI in Review • August 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2024 set explores features of genetic data that…- Gm Food
- data privacy
- rare disease
- genomics education
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Grant Abstract
Barriers in Translating Genomic Research into State Public Health Programs
This revised application for a Mentored Research Scientist Development Award (K01) is designed to support the career of Laura Senier, MPH, PhD, an assistant professor at the University of Wisconsin-…- Behavioral and Social Science
- biotechnology
- Clinical Research
- Genetics
- Health Services
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Grant Abstract
Nanodiagnostics and Nanotherapeutics: Building Research Ethics and Oversight
The ability to manipulate atoms and molecules at the nanoscale has catalyzed the emerging field of nanomedicine. While many biological phenomena occur at the nanoscale, "nanomedicine"…- Advisory Committees
- animal data
- Archives
- Area
- authority
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Video
ELSIcon2022: Paper Session 6
ELSIcon2022 • Paper Session 6 • June 1, 2022 Includes discussion material from Caitlin McMahon, Nicole Foti, Janet Shim, and Mikaella Caruncho.- Live
- Paper
- precision medicine