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Video
Migrant DNA: Context, Ethics and Legal Issues
This ELSI Friday Forum considers the ethical, social, and legal implications of the diverse applications of DNA technologies that impact migrants entering or resident in the United States. When…- Immigrants
- DNA testing
- human migration
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Publication
Privacy risks in microbiome research: Public perspectives before and during a global pandemic
Ethics & Human ResearchThe majority of the 3,106 U.S. adults that Shin and Xu surveyed expressed a desire for consent materials with detailed information about potential privacy risks associated with microbiome data.… -
Publication
Equitable community-based participatory research engagement with communities of color drives All of Us Wisconsin genomic research priorities
Journal of the American Medical Informatics Associationby Suma K Thareja, Xin Yang, Paramita Basak Upama, Aziz Abdullah, Shary Pérez Torres, Linda Jackson Cocroft, Michael Bubolz, Kari McGaughey, Xuelin Lou, Sailaja Kamaraju, Sheikh Iqbal Ahamed,… -
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Publication
Secretary's Advisory Committee on Genetic Testing: Its emerging role in public policy deliberation on genetic tests
National ForumDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Workshop Proceedings, Implications of Genomics for Public Health, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2005)
This report summarizes a 2004 workshop convened by the Institute of Medicine of the National Academies of Sciences to explore the scientific and policy issues associated with integrating genomic…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Paediatric familial hypercholesterolaemia screening in Europe: Public policy background and recommendations
European Journal of Preventive Cardiology -
Publication
Genetic screening for reproductive planning: Methodological and conceptual issues in policy analysis
Am J Public Health -
Publication
Indigenous Peoples and research: Self-determination in research governance
Frontiers in Research Metrics and Analytics