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Publication
UK Biobank: A model for public engagement?
Genomics, Society and PolicyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Science and citizens: Globalization and the challenge of engagement
Bloomsbury AcademicDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Protecting participants, promoting progress: Public perspectives on Community Advisory Boards (CABs) in biobanking
J Empir Res Hum Res Ethics -
Video
ELSIcon2024 Plenary: Indigenous Data Sovereignty: Finding Pathways for Equitable Benefit Sharing from Genomic Science
ELSIcon2024 • Plenary • June 10, 2024 Authors: Maui Hudson - University of Waikato, Te Pua Wananga ki te Ao (New Zealand) Indigenous Data Sovereignty (IDS) represents a vital…- ELSIcon2024
- 6th ELSI Congress
- Indigenous communities collaboration
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Grant Abstract
Center on American Indian and Alaska Native Genomic Research
American Indian and Alaska Native concerns about genomic research have, in a very real sense, been foundational in ethical, legal, and social implications scholarship. Sadly, many of these issues…- Alaska
- Alaska Native
- American Indians
- Arizona
- Awareness
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Video
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Publication
Genetic clinics in Arab communities: Meeting individual, family and community needs
Public Health GenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal genetic services have expanded at an extraordinary pace over the past 4 years with the development of fetal genome sequencing using cell-free placental DNA in maternal serum. Some…- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists
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Publication
Community involvement in the ethical review of genetic research: Lessons from American Indian and Alaska Native populations
Environ Health Perspect