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Video
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions
This ELSI Friday Forum took place on September 8, 2023. Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized…- Ultrarare Diseases
- N-of-1
- Individualized Therapies
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Job Posting
Clinical Ethics Fellowship
The Institute for Bioethics & Health Humanities (IBHH) at the University of Texas Medical Branch (UTMB) invites applications for Clinical Ethics Fellowship, part of our broader Visiting Scholars…- Clinical Ethics
- Fellowship
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Publication
Blockchain for genomics: A systematic literature review
Distributed Ledger Technologies: Research and Practice -
Publication
Ethical, legal, social, and policy issues in the use of genomic technology by the U.S. military
J Law Biosci -
Publication
What's in a word? Defining "gene therapy medicines"
Molecular Therapy Methods and Clinical Development -
Grant Abstract
Prenatal Testing for Disability and Parental Responsibility
This project would address several questions concerning parental rights and responsibilities in forming families and the morality of using genetic technology to prevent or create children with…- Alcohol consumption
- Attitude
- base
- Birth
- Child
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Publication
Development of the clinical next-generation sequencing industry in a shifting policy climate
Nature biotechnology