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Research Tool
Genomcis Knowledge and Attitudes Toward Public Health Genomics, Survey for Public Health Professionals
This survey that measures genomics knowledge and attitudes toward the role of public health professionals in implementing public health genomics for public health professionals. The survey is… -
Publication
Recombinant DNA research: Notice of intent to propose amendments to the NIH guidelines for research involving recombinant DNA molecules (NIH guidelines) regarding enhanced mechanisms for NIH oversight of recombinant DNA activities
Human Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Event
ELSI Journal Club | May
ELSI Journal Clubs are free, online discussions of innovative research exploring the ethical, legal, and social implications (ELSI) of clinical genetics, newly published by our journal… -
Research Tool
CSER Phase 2 Provider Return of Results Follow-up #1 Survey
CSER Phase 2 Provider Return of Results Follow-up #1 Survey is administered 0-6 weeks post-return of results to providers of research participants that were returned positive, negative, VUS, and… -
Publication
Ethical issues in human stem cell research. Volume II: Commissioned papers
The CommissionDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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News
ELSI in Review • December 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2022 set explores fertility preservation for… -
Grant Abstract
Genomics, Biometrics and Identity
Public Health Relevance Section Policies in the U.S. increasingly rely upon genomic information as a biometric to inform visa application processes, by verifying biological relationship claims or…- Advocate
- Affect
- Attention
- authority
- base
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Grant Abstract
The ethics of consent for the public release of potentially identifiable DNA data
A major ethical and policy challenge facing genomics research stems from the existing mandate for rapid public release of all sequenced DNA data. It is now clear that an individual can be uniquely…- Benefits and Risks
- Biomedical Research
- Classification
- Clinical
- clinically relevant
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In the Media
The DNA Test Delusion
Bloomsberg Businessweek |Mass-market genetic testing has little to offer most people. That’s a big problem for 23andMe.- DNA testing