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Publication
Health policy, vulnerability, and vulnerable populations
Oxford University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
eMERGE Consent and Community Consultation Working Group
Myocardial infarction (Ml) and peripheral arterial disease (PAD) pose an enormous public health burden and there is an urgent need to develop new strategies for their prevention and treatment. Both…- Age
- aged
- Ankle
- Arteries
- Arts
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Video
Advocacy and Allyship in ELSI: Opportunities and Challenges
Objectivity is a weight-bearing pillar in scientific inquiry, a norm to ensure that research and its outcomes are “value free” and unaffected by subjective value judgement. Yet ELSI research, as a…- Advocacy
- allyship
- policymaking
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News
ELSI in Review • January 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2024 set explores experiences with genetic… -
Publication
Indirect commodification of ova donation for assisted reproduction and for human cloning research: Proposals for supranational regulation
AshgateDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI in Review • February 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2023 set explores concerns about the… -
Grant Abstract
Behavioral and Psychosocial Effects of BRCA1 Testing
This research project will offer genetic testing to approximately 400 adult men and women who belong to a large kindred which has been found to have markers on chromosome 17q that are tightly linked… -
Additional Resource
Rarefied Trailer
Trailer for the documentary Rarefied. The documentary, directed & produced by Wil Weldon, follows the journey of nine families struggling with undiagnosed genetic conditions.- Duke University Center for Public Genomics
- Duke Center for Public Genomics
- CpG
- Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
- CEER
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Video
March 2025 ELSI Journal Club: Launch
CERA is excited to launch the ELSI Journal Club, a new initiative designed to foster deeper engagement with the ethical, legal, and social implications (ELSI) of genomics. This series provides a… -
In the Media
The search for the world's 'missing' genomes
BBC |Enormous strides have been made to unravel the secrets of the human genome, so why are we missing the genetic information of most of the planet?- Inequality