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ELSIcon2022 Paper: How and why do researchers use “Ancestry”?
ELSIcon2022 • Paper • June 1, 2022 Anna Lewis, Bege Dauda, Santiago Molina As the ways in which race is used in biomedicine have come under scrutiny, including for contribution to race-…- Live
- Paper
- Language and categorization
- Ethnicity
- Use of race and ancestry in research and the clinic
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Research Tool
CSER Phase 1: Baylor Advancing Sequencing into Childhood Cancer Care (BASIC3 Study)
Parent QuestionnaireThis questionnaire for parents was developed for the BASIC3 study. It collects demographic and health information, measures numeracy and genetic literacy, and records parent preferences for making… -
News
ELSI in Review • June 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use… -
Grant Abstract
The Impact of DNA Typing on Criminal Investigations
The proposed study will investigate the utilization and impact of DNA profiling (DNA 'fingerprinting') in criminal cases, exploring the integration of a powerful new technology into the…- chemical standardization
- criminology
- data collection methodology /evaluation
- diagnosis quality /standard
- DNA footprinting
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Research Tool
Common survey items, eMERGE participant survey at 0-1 month post disclosure
This survey covers disclosure of genetic test results to family members, plans for follow up care, plans for behavior changes, demographic information, and other topics. It can be administered using… -
Research Tool
CSER Phase 2 Adult Decliner Survey
This survey for study decliners captures demographic and insurance status information and elicits information about why participants declined to join the study such as privacy concerns, refusal to… -
Research Tool
CSER Phase 1: The Baylor Advancing Sequencing into Childhood Cancer Care (BASIC3) Study Brochure
The study brochure for the BASIC3 Study, funded by the NHGRI, is an easy to read description of the study purpose, eligibility requirements, and study procedures. It also offers a basic explanation… -
Research Tool
CSER Phase 2 Parent Decliner Survey
This survey for study decliners captures demographic and insurance status information and elicits information about why parents declined to enroll their child in the study such as privacy concerns,… -
News
ELSI in Review • April 2025
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our April 2025 set explores ethical considerations of…- gene therapy
- germline gene editing
- CRISPR-Cas9
- Artificial intelligence
- precision medicine
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Grant Abstract
History of Prenatal Diagnosis
This project involves the research and writing of a history of modern prenatal diagnosis. Recent scholarly work in the history of science, technology, and medicine will provide the conceptual…