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Grant Abstract
Prescriptive Decision Modeling for Cystic Fibrosis Screening
Dr. Asch will be conducting a prescriptive decision analysis for CF screening programs, which will use decision theory and economic techniques to model decision-making about CF carrier testing. The…- Cystic Fibrosis
- Decision Making
- gene mutation
- Genetic Counseling
- health care cost /financing
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Video
To Catch a Killer: Law Enforcement Uses of DNA Databases
Overview In 2018, law enforcement identified a suspect in the Golden State Killer case by matching the genomic profile of DNA left at crime scenes to those held in public databases and by using… -
Research Tool
Codebook: ENLITE - Evaluating the Benefits and Limitations of Next Generation DTC
Kilbride and colleagues explored public perceptions and knowledge of direct-to-consumer genetic testing. The REDCap codebook for this study outlines each data element of the survey, including the… -
Video
The Challenges of Standardization in a System with Complex Incentives
Gillian Hooker, PhD, ScM, CGC Date: April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used in your work? In…- Standardization
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Research Tool
Scenarios for Ethical and Legal Analysis of Genomic Data Sharing Practices
McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia. These scenarios could be used to inform the decision-making… -
Publication
Eugenics
Salem PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Eugenics
Nature Pub. GroupDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
An Evaluation of the Application of DNA Technology in Forensic Science
The Board on Biology of the National Research Council's Commission on Life Sciences is conducting a study of standards for forensic DNA typing. The development of recombinant DNA and other… -
Grant Abstract
Visions for a Sustainable World: Science, Technology, and Social Responsibility
Student Pugwash, an international organization for undergraduate science students interested in science and society interactions, developed and implemented a working group within the 7th biennial… -
Video
ELSIcon2022 Paper: The Genome and the Biome: Cystic Fibrosis @ Six Feet Apart
ELSIcon2022 • Paper • May 31, 2022 Rebecca Mueller Though cystic fibrosis is often referenced as a mendelian genetic disease, it also provides insights about the human microbiome and the…- Live
- Paper
- Population screening and public health genomics
- identity