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Publication
Data storage and DNA banking for biomedical research: Informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective
European Journal of Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
How reproductive and regenerative medicine meet in a Chinese fertility clinic Interviews with women about the donation of embryos to stem cell research
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI in Review • January 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2023 set explores the ethics of digital twins in… -
Grant Abstract
Dissemination of a BRCA1 Predisposition Testing Program (II)
This is a multi-site randomized study comparing standard genetic counseling (GC) to an enhanced consent-based (EC) model. The investigators will compare the effects of the two interventions on… -
Video
ELSIcon2022 Welcome and Keynote: The Fallacy of Biological Race: Systemic Racism in Genomics
Welcome and Introduction by Sandra Soo-Jin Lee, PhD and Mildred Cho, PhD. Keynote: "The Fallacy of Biological Race: Systemic Racism in Genomics" presented by Ruqaiijah Yearby, JD, MPH. The…- Live
- Keynote Session
- Stigma and discrimination
- Genomics
- structural racism
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Grant Abstract
DNA Identification in the Aftermath of Genocide and Mass Violence
Over the past two decades, forensic DNA profiling has become an important tool in the investigation of human rights abuse and genocide. There is, however, little understanding of the ethical,…- Africa
- African
- Americas
- Anthropology
- Asia
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Publication
Ethical issues in human stem cell research. Volume II: Commissioned papers
The CommissionDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Genomcis Knowledge and Attitudes Toward Public Health Genomics, Survey for Public Health Professionals
This survey that measures genomics knowledge and attitudes toward the role of public health professionals in implementing public health genomics for public health professionals. The survey is… -
Publication
Recombinant DNA research: Notice of intent to propose amendments to the NIH guidelines for research involving recombinant DNA molecules (NIH guidelines) regarding enhanced mechanisms for NIH oversight of recombinant DNA activities
Human Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI in Review • April 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our April 2022 set explores carrier screening,…