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In the Media
The DNA Test Delusion
Bloomsberg Businessweek |Mass-market genetic testing has little to offer most people. That’s a big problem for 23andMe.- DNA testing
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News
May 2025 ELSI Journal Club Resources
Session’s Featured Paper: Parents’ perceptions of the utility of genetic testing in the NICU Date and time: Friday, May 30, 2025 | 12pm ET US / 9am PT US Featured Author: Katharine Press… -
Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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Grant Abstract
Genomics, Biometrics and Identity
Public Health Relevance Section Policies in the U.S. increasingly rely upon genomic information as a biometric to inform visa application processes, by verifying biological relationship claims or…- Advocate
- Affect
- Attention
- authority
- base
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News
ELSI in Review • June 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use… -
Publication
Health policy, vulnerability, and vulnerable populations
Oxford University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Advocacy and Allyship in ELSI: Opportunities and Challenges
Objectivity is a weight-bearing pillar in scientific inquiry, a norm to ensure that research and its outcomes are “value free” and unaffected by subjective value judgement. Yet ELSI research, as a…- Advocacy
- allyship
- policymaking
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Grant Abstract
eMERGE Consent and Community Consultation Working Group
Myocardial infarction (Ml) and peripheral arterial disease (PAD) pose an enormous public health burden and there is an urgent need to develop new strategies for their prevention and treatment. Both…- Age
- aged
- Ankle
- Arteries
- Arts
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Publication
Indirect commodification of ova donation for assisted reproduction and for human cloning research: Proposals for supranational regulation
AshgateDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Rarefied Trailer
Trailer for the documentary Rarefied. The documentary, directed & produced by Wil Weldon, follows the journey of nine families struggling with undiagnosed genetic conditions.- Duke University Center for Public Genomics
- Duke Center for Public Genomics
- CpG
- Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research
- CEER