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Grant Abstract
Pharmacogenomics and Minority Populations
The overall objective of the proposed research is to study the ethical, legal, and social implications of drug responsive genetic variations, especially where significant differences have been found…- behavioral /social science research tag
- Clinical Research
- drug screening /evaluation
- Ethics
- Ethnic group
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Video
Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance
We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and… -
Publication
The relationship between eugenics and the so-called "euthanasia action" in Nazi Germany: A eugenically motivated peace policy and the killing of the mentally handicapped during the second World War
OxfordDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Codebook: Willingness to Pay (WTP)
Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings… -
SNAPSHOT
Could a Deadly Disease be Prevented by Editing the Genome of the Cassava Plant?
In the past decade, scientists have developed new tools for editing the DNA of living organisms, and these tools can be applied to all living organisms including the food supply. In this case study…- Gene Editing
- Agricultural Ethics
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Publication
A world of difference: The fundamental opposition between transhumanist “welfarism” and disability advocacy
BioethicsLevin critiques the "welfarist account" of disability, which issues a moral mandate to prospective parents to maximize the capacities (e.g., cognitive ability) of their future children through… -
News
ELSI Abroad: Spotlight on Australia
Across the globe, ELSI studies continue to respond to the undeniable impacts of genetics and genomics on society and address both persistant and emerging issues. We hope that a global perspective on… -
Video
ELSIcon2022 Paper: Population Frequencies of Hereditary Cancer Gene Variants in Diverse Population Groups
ELSIcon2022 • Paper • May 27, 2022 Janis Geary, Kara Hapke, Robert Cook Deegan Genetic tests to estimate individual risk of various hereditary cancers have proliferated due to improved sequencing…- Data and data stewardship
- global health
- Paper
- Pre-Recorded
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Grant Abstract
The Effect of Electronic Informed Consent Information (EICI) on Residual Newborn Specimen Research
Obtaining adequate informed consent from potential research participants is a significant challenge for biobank-dependent research. To maintain public trust and support, it is important to establish…- Attitude
- Authorization documentation
- Award
- base
- biobank
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Grant Abstract
Gene Tests for Colon Cancer Risk: Psychosocial Studies
The main goal of this proposal is to develop appropriate comprehensive counseling guidelines for predictive colon cancer gene testing by assessing perceptions and attitudes toward the gene tests,…