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  • Additional Resource

    History and Timeline of Events, National Human Genome Research Institute (NHGRI)

    The National Human Genome Research Institute (NHGRI), which directs and funds genomics research at the National Institutes of Health (NIH), provides an annotated timeline of its history including its…
  • Additional Resource

    North Carolina 2020 State Bills (North Carolina 2020 S786)

    Amends genetic nondiscrimination in employment statute. Deletes existing provision related to genetic information and adds protected classes or protected categories, which is defined to include…
  • Additional Resource

    Minnesota 2014 State Bills (Minnesota 2014 HF 2526/SF 2047)

    The bill provides options to parents regarding blood samples collected for the purpose of newborn screening, including the right to authorize in writing that the blood sample and test results may be…
  • Additional Resource

    Michigan 2013 State Bills (Michigan 2013 HB 4275 )

    An insurer may specify in writing the materials and information necessary to constitute a properly completed standard prior authorization request. The request may include patient clinical information…
  • Additional Resource

    Kansas 2014 State Bills (Kansas 2014 SB 367)

    Prohibits school districts from collecting biometric data from a student, including a DNA sequence, unless the student, if an adult, or the parent or legal guardian of the student, if a minor,…
  • Additional Resource

    Hawaii 2013 State Bills (Hawaii 2013 HB 540)

    The board of the Hawaii employer-union health benefits trust fund must require every health benefits plan established or contracted to include lower deductibles and co-payments for non-smokers of…
  • Publication

    "Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine

    Urol Oncol
    Wagner, J. K., Mozersky, J. T., Pyeritz, R. E.
    Clinical Sequencing Evidence-Generating Research (CSER) Consortium
  • News

    Scientific Dualisms

    Eric Turkheimer is the Hugh Scott Hamilton Professor of Psychology at the University of Virginia. I agreed to write a response to Erik Parens’ sympathetic comment on my book, Understanding the…
  • Publication

    Presenting behavioural genetics: Spin, ideology, and our narrative interests

    Journal of Medical Ethics
    Manson, N.C.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Additional Resource

    UCLA Institute for Society & Genetics

    The UCLA Institute for Society and Genetics incorporates scientists fully in the process of understanding ethical, legal, and societal impacts of the applications of their genetic and genomic…