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News
ELSI in Review • November 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2022 set explores ethical considerations in… -
Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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News
Request for Abstracts: ELSIcon2022
ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 • Columbia University, New York, NY Research on the ethical, legal, and social implications (ELSI) of genetics research… -
Research Tool
Setting up a Biorepository (Video), The VALUES Project, The VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was… -
Research Tool
Black-White Race Morphs Research Tool
The Black-White Race Morphs Research Tool is a resource comprised of 240 morphed images combining same-gender Black and White face images. The research tool uses original images from the Chicago Face… -
News
Will the benefits of genomics research reach “All of Us”?
One approach to identifying new potential drug targets, Dr. Keolu Fox, a human geneticist in the Indigenous Futures Lab at the University of California, San Diego claims, is adding genetic… -
Grant Abstract
Genome Technology & Reproduction - values & public policy
This project represents a unique effort to give segments of the public an advance look at the emerging genetics technology, to learn from lay and professional communities how they feel about that… -
Grant Abstract
Interdisciplinary Center on Epigenetics Science and Society
One of the intended goals of the ELSI CEER program is to provide guidance on policy issues that arise from novel genetic and genomic science and applications. This focus, however, misses epigenetic…- base
- Behavior
- Cancer Diagnostics
- cancer therapy
- Cells
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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
This project will identify and address ethical and practical barriers to qualitative data sharing (QDS) in health sciences research. Qualitative research has unique value in understanding health…- Algorithms
- Attitude
- base
- Bioinformatics
- Case Study
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Research Tool
CSER Phase 1: Personalized Medicine Based on Molecular Profiling of Pediatric and Young Adult Patients with Cancer Study Protocol
The Personalized Medicine Based on Molecular Profiling of Patients with Cancer implements a mechanism for patients who have advanced or refractory cancer to undergo tumor sequencing, sequence…