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Publication
A game theoretic approach to balance privacy risks and familial benefits
Scientific ReportsGuo and colleagues use a game theoretic approach to model how consumers of third-party interpretation (TPI) services may act as they weigh the benefits of sharing their genetic data against the… -
Grant Abstract
The Stanford Training Program in ELSI Research
This application is for continued T32 support of a research training program at Stanford University to create independent scholars who can conduct rigorous research on ethical, legal and social…- ethical legal social implication;Research;Training Programs
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Grant Abstract
The Stanford Training Program in ELSI Research
This application is for continued T32 support of a research training program at Stanford University to create independent scholars who can conduct rigorous research on ethical, legal and social…- ethical legal social implication
- Research
- Training Programs
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News
Joy Boyer, Reflections on a Career in ELSI
An exceptional team of program directors administers the ELSI Research Program at the National Human Genome Research Institute (NHGRI), the ongoing, extramural funding program that has served as a… -
News
ELSI Abroad: Spotlight on Belgium
In this fourth installment of our series of interviews that aim to foster a global perspective on the ELSI field of study and inspire information sharing and collaboration across national borders, we… -
Collection
Patient Perspectives on Uncertainty in Genomic Medicine
All medical information is subject to uncertainty, but the practice of medical genetics is characterized by unique magnitudes and forms of uncertainty. In fact, for many patients, a “positive”…- variant of uncertain significance
- incidental finding
- patient experience
- clinical decision-making
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Grant Abstract
Microbiome-Based Diagnostics: Stakeholder Perceptions and Implications for the Regulatory Framework
The state of knowledge regarding the human microbiome is advancing rapidly and a burgeoning new area of research and development is microbiome-based diagnostics. There is much that is not yet known…- Award
- Baltimore
- base
- Benefits and Risks
- Bioethics Consultants
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Grant Abstract
Risk-Benefit Trade-Offs for Whole Genome Sequencing
New technologies are enabling the arrival of the much awaited affordable genome the ability to sequence an individuals or a tumors entire genome quickly and inexpensively [whole genome sequencing (…- Benefits and Risks
- Clinical
- clinical care
- clinical practice
- Clinical Trials
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Video
Genomics and Infectious Disease: Scientific and ELSI Issues of COVID
Genomics is being used in several distinct ways to understand and address the Covid-19 pandemic. Pathogen genomics investigates the genetics of the virus itself and enables identification and…- genomics and infectious disease
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Grant Abstract
Precision Genomics in the WISDOM Pragmatic Clinical Trial: An Embedded ELSI Study of Risk-based Breast Cancer Screening
Using emerging genomic information to create opportunities for targeted or risk-based screening in cancer prevention and control is a critical component of President Obama's Precision Medicine…- Administrator
- Adoption
- Advocate
- African American
- Anxiety