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News
ELSI in Review • September 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2022 set explores parent experiences with… -
Video
ELSIconversations ELSICon2022: Stakeholder Perspectives on Data Sharing and Privacy
Co-Moderators: Vasiliki N. Rahimzadeh, PhD; Sara Ackerman, PhD, MPH; & Sandra Soo-Jin Lee, PhD Presenters: Karen Meagher, PhD, Alyx Vogle, MS CGC, & LaKisha David,… -
Video
ELSIcon2022 Paper: When State Laws Conflict: Choice of Law Challenges in Multi-Site Research
ELSIcon2022 • Paper • May 31, 2022 Laura Beskow, Leslie Wolf Our previous research demonstrated that precision medicine research implicates numerous state laws, including human subjects…- Live
- Paper
- Laws and research sites
- precision medicine
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Grant Abstract
iCONCUR: informed CONsent for Clinical data and biosample Use for Research
Being transparent about the use of data collected during clinical care is important to establish trust relationships between patients and researchers. We propose to develop a system to elicit patient…- Ambulatory Care Facilities
- Back
- base
- Caring
- Case Report Form
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Grant Abstract
Neurobiological Predictors of Huntington's Disease
The proposal is a longitudinal study of potential neurobiological and neurobehavioral markers of disease onset and progression in pre-symptomatic individuals who have the CAG expansion in the HD gene…- Activities of Daily Living
- Affect
- Anisotropy
- Award
- Behavioral
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Grant Abstract
The Electronic Medical Records and Genomics (eMERGE) Network Phase III - Coordinating Center
The eMERGE project brings together researchers with a wide range of expertise in genomics, statistics, ethics, informatics, and clinical medicine from leading medical research institutions across…- Agreement
- Algorithms
- Arbitration
- biobank
- clinical implementation
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Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…- Address
- Behavioral
- Biomedical Research
- Categories
- Collection
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News
CERA and The Hastings Center Partner to Support Early-Career Scholars
CERA and The Hastings Center are proud to announce a new partnership to support career development for students who are interested in ethical, legal, and social implications research of genomics…- Sadler Scholars
- Trainees
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News
Special Issue Call for Papers: Envisioning a More Just Genomics
Deadline Extended: April 7th, 2023 at 11:59 EST The Center for ELSI Resources and Analysis (CERA) and The Hastings Center are sponsoring a special issue of the Hastings Center Report that looks…- call for submissions
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most…